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Building partnerships in the community

Building stronger partnerships with SCD organizations

Helping patients with sickle cell disease (SCD) identify resources can build trust and understanding as they work with you to manage their condition

Beyond the patient's healthcare team, there is an entire SCD community, including advocacy organizations, who can help patients with SCD. These organizations can provide patients with ongoing support and resources.

Dr. Abena O. Appiah-Kubi discussing the importance of sickle cell support systems

You need a support system. You need a supportive group of people to help you do what you need to do in life. So it’s just making sure you have that support system to help you navigate this thing called life, now with a chronic illness.”

Abena O. Appiah-Kubi, MD, MPH